The story of a dying child’s wish to pass away at home has become an intense and heartbreaking debate about quality of life, euthanasia, and the agency of children to make these decisions.
Five-year-old Julianna Snow has been living with a rare, incurable disease for her whole life. It’s called Charcot-Marie-Tooth disease, named for the French and British doctors that discovered it.
A common cold virus could kill her. Even if hospital treatments are able to keep her alive, she will have a very low quality of life.
Julianna told her parents that the next time she has to go to the hospital for a painful treatment, she would rather stay home and pass away. Her mother, Michelle Moon, wrote a blog post about their family’s experience, and says she’s told her daughter she’ll be going to heaven.
This is obviously a very controversial topic, with people debating whether or not a child can make the decision to end their life.